I'm currently sitting at breakfast with a view of Mount Kinabalu in Kinabalu National Park, Borneo, Sabah region. It's slightly cloudy but going to be warm until it no doubt rains later this afternoon at some point. Torrential rain. The weather is very unpredictable here. We booked this trip just before I got my diagnosis… Continue reading When you can’t take part, however much you want to
Today I'm feeling pretty fuzzy. It's a combination of an inability to properly focus on anything with my eyes or mentally, feeling unstable on my feet, clumsy and generally weak, not being able to concentrate properly. I have still come to work despite having 4 lessons in a row, again. For the second day this… Continue reading Today is a fuzzy day
The week so far has been a bit 'blah'. That's a technical term meaning that I don't quite know how I'm going to feel from one hour to the next but generally speaking I'm not feeling great. I've been sleeping so well but that isn't shifting the groginess in the morning or the general lethargy,… Continue reading It’s a ‘blah’ kinda time
Photo by Steve Johnson on Pexels.com Waiting. Patience. They're pretty hard things to do and be when there is only so much influence you have to push a process along. It's when you're the one turning the clogs to get even the initial stages completed that your patience is tested. What am I referring to?… Continue reading Be proactive!
Photo by Lisa Fotios on Pexels.com Normal. A word that has both positive and negative connotations depending on the context in which it is uttered; tone of voice, inflections of the word, the choice of words used in that utterance, the theme of the conversation... So when people say to you ' I hope you… Continue reading What is ‘normal’ when you have a chronic illness?
Sunday was CFS/ME awareness day. I meant to write this then but didn't quite get round to it. I knew it was coming up but only remembered because I was scrolling through the BBC news app and very near the bottom was an article written by a young journalist in her early twenties who has… Continue reading CFS/ME awareness day
Photo by Acharaporn Kamornboonyarush on Pexels.com In all the literature I have read, theyk9 emphasise the importance of a bedtime routine. The importance of winding down the same way each night to let your body know that it’s time for bed. This could be by having a bath or reading a book. They all agree… Continue reading Routines are important