When you can’t take part, however much you want to

I'm currently sitting at breakfast with a view of Mount Kinabalu in Kinabalu National Park, Borneo, Sabah region. It's slightly cloudy but going to be warm until it no doubt rains later this afternoon at some point. Torrential rain. The weather is very unpredictable here. We booked this trip just before I got my diagnosis… Continue reading When you can’t take part, however much you want to

Today is a fuzzy day

Today I'm feeling pretty fuzzy. It's a combination of an inability to properly focus on anything with my eyes or mentally, feeling unstable on my feet, clumsy and generally weak, not being able to concentrate properly. I have still come to work despite having 4 lessons in a row, again. For the second day this… Continue reading Today is a fuzzy day

What is ‘normal’ when you have a chronic illness?

Photo by Lisa Fotios on Pexels.com Normal. A word that has both positive and negative connotations depending on the context in which it is uttered; tone of voice, inflections of the word, the choice of words used in that utterance, the theme of the conversation... So when people say to you ' I hope you… Continue reading What is ‘normal’ when you have a chronic illness?

Routines are important

Photo by Acharaporn Kamornboonyarush on Pexels.com In all the literature I have read, theyk9 emphasise the importance of a bedtime routine. The importance of winding down the same way each night to let your body know that it’s time for bed. This could be by having a bath or reading a book. They all agree… Continue reading Routines are important