Photo by Lisa Fotios on Pexels.com Normal. A word that has both positive and negative connotations depending on the context in which it is uttered; tone of voice, inflections of the word, the choice of words used in that utterance, the theme of the conversation... So when people say to you ' I hope you… Continue reading What is ‘normal’ when you have a chronic illness?
Sunday was CFS/ME awareness day. I meant to write this then but didn't quite get round to it. I knew it was coming up but only remembered because I was scrolling through the BBC news app and very near the bottom was an article written by a young journalist in her early twenties who has… Continue reading CFS/ME awareness day
Photo by Acharaporn Kamornboonyarush on Pexels.com In all the literature I have read, theyk9 emphasise the importance of a bedtime routine. The importance of winding down the same way each night to let your body know that it’s time for bed. This could be by having a bath or reading a book. They all agree… Continue reading Routines are important
We went away at the weekend to visit a friend I've known for 13 years (wow, that's a long time!) I felt really good on the Saturday afternoon and evening, even after a 2 hour adventure in some woods where we ended up scrambling up a hill to reach the path. Then later we were… Continue reading Sometimes you have to admit defeat for the greater good
Photo by Pixabay on Pexels.com For the last 2 months I have been working with a personal trainer. The reason I started these weekly sessions is because I had read in multiple books the benefits of strength training in helping you recover from CFS/ME. There is research that proves GET (Graduated Exercise Training/Therapy) aids recovery… Continue reading How strength training and nutrition helps me
I've realised that it's been a few weeks since I last wrote a post and it's not because I've been busy or haven't wanted to; quite the opposite. We went away for our first wedding anniversary and then spent another week trying to get over the jet lag, doing some gardening and generally continuing the… Continue reading I’m back!
Accepting a slower pace of life From the moment I got the diagnosis I’ve only looked forward. I thought I accepted it quite quickly as I began to take steps to learn how to manage my life with this illness. However, with hindsight, I’ve come to realise that the process of acceptance has taken time.… Continue reading Why I am accepting an element of vulnerability