keep pacing and keep smiling
Welcome to my blog! I've just been diagnosed with CFS/ME (Chronic Fatigue Syndrome). Whether you're a fellow suffer, know someone who suffers from this or would simply like to know more, please feel free to read my posts. I hope that you find this blog informative.
Yesterday we went to the annual friends' Christmas meal. It was the best attended yet and the addition of more children (babies) added to that number. It was great to see everyone and although I didn't get to speak to everyone it was great to catch up with those I did. Some we only see… Continue reading Why I struggle in social situations
Tiredness versus fatigue, what's the difference? Are they different? Well actually, yes, yes they are. Very different. When I tell people a bit about what CFS/ME is, some nod and ask questions. They may comment they they feel tired too at times not fully understanding that tiredness and fatigue are different. I've had conversations with… Continue reading Tiredness versus fatigue
On Monday (it's now Thursday), I had my appointment at the specialist clinic. Finally. I'd been waiting since early March 2019 for this appointment and apparently that is a relatively short wait as some wait years to see a specialist for one reason or another. I had about 10 double-sided sheets of A4 to complete… Continue reading That long-awaited appointment
Last Friday I was at a school friends' wedding (I know the bride and groom from school) and I got asked this a lot. It is a standard first question when you see someone regularly or not. In this case, about a third of the guests I knew but hadn't seen since I was 18… Continue reading ‘How are you?’
A year ago today I had my first day off work for what turned out to be nearly 4 months. That period is pretty vague in my memory. I still have the notes I made of the symptoms I had during that time to ensure I told the Dr everything and didn't miss anything out.… Continue reading A year ago today…
After a 6 week summer holiday, I've had my first week back at work. Technically, I've had two teaching 'days' because Monday and Tuesday were INSET days - meetings and time to run around like a headless chicken trying to get all the new year admin sorted - and Wednesday we had year 7 and… Continue reading Back to work and it’s been a struggle
I could watch them all day! Sepilok Orangutan Rehabilitation Centre, Borneo In April we spent a week in Jamaica which has a very hot climate but it's dry. As a result of this holiday, I knew that heat coupled with no stress helps reduce my symptoms significantly. Yet before our recent trip to Borneo, I… Continue reading Travelling in humid countries with CFS/ME
I'm currently sitting at breakfast with a view of Mount Kinabalu in Kinabalu National Park, Borneo, Sabah region. It's slightly cloudy but going to be warm until it no doubt rains later this afternoon at some point. Torrential rain. The weather is very unpredictable here. We booked this trip just before I got my diagnosis… Continue reading When you can’t take part, however much you want to
Today I'm feeling pretty fuzzy. It's a combination of an inability to properly focus on anything with my eyes or mentally, feeling unstable on my feet, clumsy and generally weak, not being able to concentrate properly. I have still come to work despite having 4 lessons in a row, again. For the second day this… Continue reading Today is a fuzzy day
The week so far has been a bit 'blah'. That's a technical term meaning that I don't quite know how I'm going to feel from one hour to the next but generally speaking I'm not feeling great. I've been sleeping so well but that isn't shifting the groginess in the morning or the general lethargy,… Continue reading It’s a ‘blah’ kinda time
